HDSA Education Day
by Maria Carla Correa
The Huntington’s Disease Society of America (HDSA) and their Centers of Excellence host Education Day, an annual event dedicated to patients, friends, and families, experts, and anyone interested in learning about Huntington’s Disease. Usually, the events are hosted in person by the Centers of Excellence, but for this year, they are virtual due to COVID. So far Centers from the South Dakota, Missouri, and San Diego chapters have hosted an Education day, and on May 7th, 2022, Stanford University’s Center of Excellence’s will host an Education Day of their own.
The event will run from 8:30 a.m. to 11:35 a.m. PT, and will feature the Center’s director, social workers, doctors, and more. The schedule of planned programming for Education day is as follows:
8:30 – 8:40 a.m. – Dr. Sharon Sha, the director of Stanford’s Center of Excellence, provides attendees with and introduction and welcome
8:40 – 9:10 a.m. – Betsy Conlan, a Licensed Clinical Social Worker, and Carly Siskind, a genetic counselor, from the Center partake in a Q&A session about social work and genetic counseling
9:10 a.m. – 9:30 a.m: – Dr. Gaurav Mohit Chattree, Dr. Phuong Thi Hoang, and Dr. Jessica Ng speak about medication for Huntington’s Disease
9:30 – 9:50 a.m. – Dr. Maya Katz, a doctor at the center and a Clinical Associate Professor, discusses palliative care and its use for patient well-being
10:00 – 10:20 a.m. – Break
10:20 – 10:35 a.m. – Cat Fergesen, a podcaster for HOPES, and Mason Gonzalez, a student researcher for HOPES, discuss the cancellation of the Generation-HD1 study and share an interview with a study participant
10:35 – 10:45 a.m. – Panel discussion
10:45 a.m. – 11:00 a.m. – Dr. Silvia Russo shares insight into common cognitive problems of HD and workarounds that exist to address these
11:00 a.m. – 11:20 a.m. – Physical Therapist for Outpatient Rehabilitation Jesse Klimek speaks about Rehabilitation for Huntington’s Disease
11:20 – 11:35 a.m. – We close off Education Day with a message from Therese Crutcher-Marin, the Chair for the HDSA San Francisco Bay Area Affiliate, discussing the “Who, What, Where, When, and Why the SF Affiliate.”
If you or anyone you know would like to attend this event, please register using the following link: Stanford Registration for Education Day 5-7-22
We look forward to seeing you there and gaining the chance to continue learning about Huntington’s Disease together.