About HOPES: Huntington’s Outreach Project for Education, at Stanford

HOPES is a team of faculty and undergraduate students at Stanford University dedicated to making scientific information about Huntington’s disease (HD) more readily accessible to the public. Our goal is to survey the rapidly growing scientific literature on HD and to consolidate this information into a coherent, reliable web resource that reflects current scientific understanding of HD. We seek to provide accurate, helpful information about the causes of HD, existing treatment options, and recent advances in HD research. To date, HOPES resources have reached out to families in over 47 countries. (Note: the map image below originally appeared at http://www.worldfactsandfigures.com/maps/802802.jpg.)

We emphasize that we are not medical professionals, nor are we affiliated with the researchers or laboratories mentioned on our pages. The information we present is intended for educational purposes only and should not be construed as offering diagnoses or recommendations. We operate as a not-for-profit public service organization, and our funding is entirely from private sources.

Among our fondest HOPES are that this web resource will help to demystify and de-stigmatize Huntington’s disease in our society, and that individuals concerned about or affected by HD will gain a clearer understanding of the disease through exploring these pages. We hope that people will gain a more realistic assessment of what is known—and not known—about the disease and about the prospects for treatment and cure.

Click here to watch introductory footage from the HOPES 2007 Mini-Conference "Award Ceremony;" the theme was the "HOPES Oscars."

Current HOPES Members:

• Natalie Justicz - Graphic Artist, Junior in Human Biology
• Mesa Schumacher - Graphic Artist, Senior in Anthropological Science
• Adam Hepworth - Researcher, Junior in Human Biology
• Amy Frohnmayer - Researcher, Senior in Psychology
• Matt Woloszyn - Researcher, Senior in English
• Jonathan Dyal - Researcher, Senior in Human Biology
• Faren Clum - Project Leader & Researcher, Junior in Human Biology
• Danny Neumann - Web Developer & Graphic Artist, Junior in Geophysics
• Justine Seidenfeld - Researcher, Senior in Human Biology
• William Durham, Ph.D. - Faculty advisor, Bing Professor in Human Biology, Department of Anthropological Sciences

Past HOPES Members: We'll miss you!

• Alicia Follmar - Researcher, Human Biology
• Aliyya Haque - Researcher, B.S. in Human Biology
• Christina Chen - Project Leader & Researcher, B. S. in Human Biology, '07
• Devon McGee - Project Leader & Researcher, B.A. in Human Biology, '06
• Stanislav Jourin - Art Director, M.S. in Digital Imaging & Design at NYU, '04
• Kim Taub - Project leader & Researcher, B.A. in Human Biology, '05
• Taylor Altman - Researcher, B.A. in Human Biology
• Jia Hou - Researcher, B.A. in Human Biology
• Agnieszka Milczarek - Researcher, B.S. in Biology and B.A. in English
• Leon Hsu - Researcher, B.A. in Human Biology, '05
• Clare Tobin - Researcher, B.A. in Human Biology
• Michael Morici - Researcher, B.S. in Biology
• Tonkid Chantrasmi - Web developer, Graduate Student in Mechanical Engineering
• Shawn Fu - Web developer & graphic artist, B.S. in Biology, '03
• Amy Hsu - Project leader, B.S. in Mathematical and Computational Science, '02
• Matt Stenerson - Project leader & researcher, B.A. in Human Biology, '03
• Cathy Barnard - Researcher, B.A. in Human Biology, '04
• Kaizad Cama - Researcher, B.A. in Human Biology, '03
• Peter Chang - Researcher & web developer, B.S. in Biology '03
• Darwin Chen - Researcher, B.A. in Human Biology, '02
• Tucker Cunningham - Web developer & graphic artist, Senior in Computer Science
• Jaclyn Czaja - Researcher, B.A. in Human Biology, '02
• Karen Hammond - Researcher, B.A. in Psychology at Carleton College, '03
• Kelvin Ho - Web developer & graphic artist, B.S. in Computer Science, '04
• Tracy Ho - Researcher, Senior in Human Biology
• Vinita Kailasanath - Researcher, B.A. in Human Biology and American Studies, '03
• Shashikant Khandelwal - Web Developer, Graduate Student in Computer Science
• Ruth Lo - Researcher, B.A. in Human Biology, '04
• Jean-Gabriel Morard - Web developer, Graduate Student in Computer Science
• Melissa Schapiro - Researcher, B.S. in Biology & Psychology, '04
• Gina Schiel - Researcher, Senior in Human Biology
• Elyn Tan - Researcher, B.A. in Human Biology, '03
• Joakim Vinberg - Web developer and graphic artist, B.S. in Biotechnology, '04
• Belinda Fu, M.D. - Faculty advisor, Lecturer, Department of Human Biology
• Joanna Mountain, Ph.D. - Faculty advisor, Assistant Professor, Department of Anthropological Sciences and Department of Genetics
• Ronald Barrett, R.N., Ph.D. - Faculty advisor, Assistant Professor in Medical Anthropolgy

We welcome any suggestions or corrections you may have for our site. If you have any questions or comments, please contact us: hopes-mail@lists.stanford.edu.

Thank You!

Last Modified: 02/09/2008

An educational product of HOPES, not to be used in place of medical care. For more information about HOPES, click on the Logo. To contact HOPES with comments or questions, click here.